Why people with long-term health issues do need a Care Plan.

It’s easy to think that sticking us in a building is okay and that’s all we need.

Well unfortunately, fatigue, lack of balance and co-ordination, which gets worse for me during the day and our bodies turning hot for no reason, which means I’m sweating in my clothing, then go cold for no reason, says something else.

This is the case in cleaning anything, from washing a plate, to cleaning my room and the rest of my dwellings.

I pay for a housekeeper, which isn’t cheap but she is someone I can trust and does a wonderful job.

I don’t insist that she wears a housekeeping outfit. I’m just very grateful that she makes my place well-loved, cared for and hospitable.

This includes tidying up my bedroom and changing bed sheets. I’m grateful for this. Before my housekeeper, I would look at my dwelling and cried. Not just because of the mess but because of the frustration of not being able to do it myself, as I did before having Multiple Sclerosis (MS).

There’s no point in moaning to myself, ‘why is this so hard for me?’ as I’ve accepted that my cry will only be answered by getting a housekeeper that I know who’ll not steal from me.

We don’t like asking, as I, like many who have a long-term health condition, affecting the central nervous system, want to se seen as strong, independent and capable.

But our health says to us, NO, IT’S NOT GOING TO HAPPEN AND I WON’T LET YOU DO THIS!

We smile and remember to be friendly, even when we know that those same people that we are being nice to, are talking about us, in a nasty way, behind our backs or have an ulterior motive, when asking us questions in a friendly way and manner.

My condition is only going to get worse. I’m not being weak-willed. I don’t bite. I’m human and I’m stll capable of turning up for meetings. That’s got to count for something!

Light and Peace

Andria.

WE ARE PEOPLE WITH A LOBATOMY.

There’s nothing we can do about it. This I hope, explains why we loose skills we once had, such as walking, writing and, in my case, touch and audio typing. So when it comes to housing costs, that’s why we do need certain items, such as new wheels for our wheelchairs, Zimmer-frames and scooters. This also includes certain flooring. I assure you, there’s no fun in kissing the floor because we’ve fallen over, especially when there’s an object like a desk or chair in front of you. This usually happens because of foot dragging, which we cannot stop. To give you more detail, Multiple Sclerosis means that I’ve got holes in my brain, which is why I compare what is happenoing to me, to being lobatmised. It’s why I also cannot write or work anymore. I also buy books aimed at children who need help with speaking, as there’s only a certain number of classes I’ll get, regarding speech therapy. I appreciate that adults are concerned when they see me in the children’s section of a library, but I assure you, it’s because I want to look at the books that help with speech. It also hurts that I’ve lost my savings but I have to get things immediately to live with my condition, which is why, along with loosing other enjoyments I used to do, such as going to the theatre or opera, I have no choice but to claim Universal Credit (UC). So please don’t be rude to us, or use the disabled toilets, as we have no choice but do this. I have to wear adult nappies, when I’m outside my dwelling. To get the nice ones that look like everyday underwear, I have and do, pay privately for them, from my benefits. So please cut us some slack, life for us isn’t black and white but shades of grey, without the excitement of the 50 shades novel. Light and Peace Andria.