As I’ve said before and I still stand by this, nobody has a duty to give me a job, if they don’t want to.
I do miss
the freedom to also have a focus, to stive to achieve a goal and getting there.
which comes with having a job.
As much as
I don’t want to admit this, despite taking few sick-days in my time, looking at
the other conditions that come with multiple sclerosis (MS), I understand why
people are unwilling to employ me.
If, like me, you ae a workhorse, you never get use to the pain of not working but you accept, the conditions that come with MS are out of our hands.
When my GP said to me: "I have to sign you off from work", I hated her for saying these words to me, but within five minutes of her saying this, I knew she was right.
Sadly I still keep applying for jobs, hoping that someone will give me a chance.
I also accept
employing a person who is dealing with::
Depression
Memory
issues
Vision problems
Losing my
ability to write
Fatigue
Motability
issues
Numbness
Loss of
balance (wheelchair included)
Dizziness
Spasms
Cognitive
issues
Anxiety
Tremors
Pain
Bladder
issues
Bowel
problems
Motor skills
Work meant
I had skills that I’d practiced long and hard to perfection. To lose these
skills and abilities, because of my disability, that I wouldn’t have chosen to
have, and it's still gut-wrenching.
I’ve learnt
how to speak again, using exaggerated articulation but I can’t write or
audio/touch type.
I still apply
for jobs that are for a data entry person but they won’t contact me again,
despite these jobs being seated jobs, which is suited to my needs.
Remember
this, to all people with a long-term health issue:
YOU ARE
HERE BECAUSE YOU HAVE EVERY RIGHT TO BE HERE!
Light and
Peace
Andria
I’m all too aware of this feeling, especially when it comes to making job applications.
Even now,
it still hurts when I get rejected for jobs that I can do but when they realise
I’ve got multiple sclerosis and asthma, they lose their enthusiasm to have me
in their company.
The right support changes everything for the better. I’m a loyal and hard-working person but once they realise I’m in stage two of MS, I won’t hear from them again.
So I remind myself of what I’d say to myself before having this long term illness. Nobody has a duty to give me a job.
But please remember this, if (like me) you do have a chronic neurological disease affecting the central nervous system:
Your
illness is not your fault.
You didn’t
choose to be unwell.
You do not
deserve to be unwell.
You are not
letting anyone down by having MS.
You are not
a failure by having MS.
The following statement goes for everyone, male and female, regardless of your situation, race or sexuality:
Don’t let
anyone make you feel guilty or obligated.
Light and
Peace,
Andria.
How is it, that some people can really put you down, and make you feel like total rubbish, in just a couple of words? People with multiple sclerosis, MS, unfortunately know about this.
There's something around disability going on here, that I
can't even talk about, but it IS about that and writing us off as
useless, or looking at our disability and seeing us as being a bunch of moaners
and parasites, instead of realising, like anyone else, we have needs that must be addressed.
I know finding somewhere to live, in the UK isn’t easy, so
when we do find a dwelling that will accept us - people with a long-term health
issue that’s only going to get worse - we are very grateful but please realise
adjustments need to be made, regarding our disability, to make that
accommodation safe for us to live in.
I can use some weights machines and do a front-crawl swim but
there are days, weeks or even months when I can’t due to my fatigue and lack of
ability to fight-off infections. It’s made worse by the MS, which also interferes
with balance and co-ordination
People can look at me, and assume that I am just
exaggerating and making it up, but I’m not. There are other people who also have MS or
other long-term health issues affecting the body/mind and know, to
make an important life-style decision between heating and eating. I choose heat,
as cold weather makes my body condition worse.
I don't need people putting me down and devaluing my worth
but some people do. That’s why, when another person tries to be friendly, many
of us get ratty, because when someone, innocently tries to be nice, we wrongly
say to ourselves, ‘what are they up to?’
I am not making excuses for us, as I accept, we must realise
not all people are bad. As with life, we need to realise, there are good people
too.
One of the hardest lessons I’ve learnt in life is to accept
I meant nothing to people who meant the world to me. But this is the case for
all of us, whether you’re disabled or not.
I still say, to one and all, regardless of your health, ENJOY LIFE, IN THE HERE AND NOW!
DON'T FORGET TO HAVE
A GREAT DAY!
Light and Peace
Andria
I’m aware that people who read this, tend to think my
life is about doom and gloom.
Please realise it’s also about enjoying life to the
best too.
That’s why we need the money we get. We do
need help in the form of other people washing ourselves.
Even if we don’t need that kind of help, when, like
me, you’re at stage two of MS, you do still need help, regarding flooring,
toilet and bathroom aids.
This ranges from getting internal and external mats, railings,
special underwear (okay, adult nappy's) and special products to clean 9 intimate areas of the human
body.
All of which, are pricey and have to be replaced, along
with getting other medical products for internal use, I assure you, despite
having to deal with these issues every day, I do still decide that I still want
to enjoy life, so I’m going to say this:
I WISH ALL OF YOU MOMENMTS OF PEACE AND HAPPINESS IN
YOUR DAY. YOU DESERVE WONDERFUL THINGS.
Light and Peace
Andria.
