I LIKED WORK.

When I was told by my doctor that I have to be signed-off from work, due to me having Multiple Sclerosis (MS) it really hurt me, emotionally and psychotically.

You see, what I missed about work is creating a staggery, plans and getting the right people to do the work and delivering the right results to and for the correct people.

That also meant walking 20 minutes to the underground or overground station, the day before work, which was part of my routine. I liked getting up, washed, dressed and travelling to work. But now, I can’t write. I’ve learnt how to speak again, thanks to speech therapy but I do still get brain-fog and bladder issues.

When the only work I could get was voluntarily, as a receptionist at the now defunct Brent Association of Disabled People, I took it, gratefully.

I liked reading through documents to get things done. Now, even when reading for pleasure – at the moment,

I‘m reading You With The Sad Eyes, by fellow MS sufferer Christina Applegate, I do so with a magnifying glass.

I liked having the focus and drive to get things done, as well as remaining pleasant to colleagues, as I was also respectful of their needs and space.

I admit, I liked getting things done. When I was given the diagnosis of MS, I knew that my world had collapsed and for many years, I was determined to find out why I had been diagnosed with MS and find a cure.

I’ve since accepted there’s no cure and my need to be in a wheelchair. So please, be kind and nice, to people like me, as they too, had plans, hopes and dreams before getting the same diagnosis as me.

Many of us, at first, do get annoyed because we do through a phrase of saying, to ourselves and others, why me? Accepting this co9ndition isn’t easy.

We also become easy targets of people pretending to be nice but see us as easy targets to rip-off - that’s why many of us get angry.

Unfortunately for many of us, we realise this behaviour from others, is now a part of life, for us. Light and Peace Andria